Regina Holliday is an artist, wife, mother, friend, and fierce patient advocate. She has created The Walking Gallery, now at 80+ story-telling jackets worn by people who have shared their personal stories about health, life, death, joy, and empowerment.
Regina debuted my jacket on her blog this morning. It’s called “See Jane Think,’ and Regina has channeled my story and something we have in common: our childhood reading primer of Dick and Jane.
Regina riffs in her blog about learning to read out of Dick and Jane, and most kids did since the books hit U.S. school bookshelves in the 1930s and were used into the 1970s. As an early reading primer, the books start off with simple phrases like, “See Dick run. She Jane read.”
Regina titles the jacket, “See Jane Think,” speaking to my personal and professional branding as “THINK-Health” and the nature of the work I do. She continues to expand this story, bringing in the character of my father morphed as Dick of young and old age. Charles Sarasohn found himself at the end-of-life in one of U.S. News & World Report’s “Best Hospitals” CHF units, having been resuscitated in the middle of hte night when, in fact, he had orders not to resuscitate.
His voice was not heard. Regina captures this poignantly as Dad holds up a piece of paper begging, “Let Patients Speak.”
Health Populi’s Hot Points: I wrote about the need for advanced digital directives in iHealthBeat the week after Dad died from heart failure. You can read that column here.
On Sunday 25 September 2011, Patients 2.0 will meet up in advance of the big Health 2.0 meeting which convenes on the 26h in San Francisco. Regina and other passionate patients will be with me to share their stories and work in groups that will be pushing efforts forward for all engaged patients.
In the meantime, I’m anxious to try on my new jacket when I meet up with Regina…and to give her a huge hug of appreciation. How she channels those of us for whom she paints The Walking Gallery couture mystifies and delights me.