Health info disconnect: most people view accessing online records important, but don’t perceive the need to do so
There’s a health information disconnect among U.S. adults: most people believe online access to their personal health information is important, but three-quarters of people who were offered access to their health data and didn’t do so didn’t perceive the need to. The first two graphs illustrate each of these points. When people do access their online health records, they use their information for a variety of reasons, including monitoring their health (73%), sharing their information with family or care providers (44%), or downloading the data to a mobile device or computer (39%). In this context, note that 1 in 3
Health on the 2014 Gartner Hype Cycle
Remote health monitoring is in the Trough of Disillusionment. Wearables are at the Peak of Inflated Expectations, with Big Data leapfrogging wearables from the 2013 forecast — both descending toward the Disillusionment Trough. Mobile (remote) health monitoring, however, has fallen into that Trough of Disillusionment as RHM has been undergoing reality checks in the health care system especially for monitoring and patient self-management of heart disease (most notably heart failure) and diabetes. Welcome to the 2014 edition of the Gartner Hype Cycle, one of my most-trusted data sources for doing health industry forecasts in my advisory work. Compared with last year’s
Understanding the patient journey – using real-world data
It’s de rigueur for any organization marketing a product or service in health care to be “patient-centered” these days. “Patient engagement” and “health engagement” are phrases found on health conference agendas, whether pitching to attendees in pharma and life sciences, health IT, health insurance, or healthcare (to hospitals and physicians, alike). One paradigm for patient-centricity that’s more mature than most is IMS Health’s Patient Journey construct, which the data-driven company has been talking about since 2012. While the concept focused mainly on pharmaceutical marketing and medication adherence, it’s useful for all industry segments looking to motivate behavior change in health
Do EHRs “chill” patient disclosures to clinicians?
Patients are concerned about private risks of personal health data, resulting in some patients not disclosing certain information to health providers to protect their perceived EHR privacy and security risks. Peoples’ mixed feelings about sharing personal health information with their providers and EHRs is explored in The double-edged sword of electronic health records: implications for patient disclosure, published in the July 2014 issue of JAMIA, the Journal of the American Medical Informatics Association (AMIA). “The perception of the [EHR] technology may elicit non-disclosure as a privacy-protecting behavior,” the authors warn. Celeste Campos-Castillo and Denise Anthony, the paper’s researchers who work in
Hyperconnected Healthcare – The Need for Cyber-Resilience
The growth of data, small and Big, in health care motivates the industry’s stakeholders to adopt technologies that help store, manage and analyze data to drive knowledge and, ultimately, individual and public health. Healthcare is embracing cloud technology, mobile platforms, social networks, e-commerce, robotics, and the Internet of Things (IoT), among a growing list of tech innovations. Each of these innovations, which enable productivity and economic growth, also present cybersecurity risks. The value of these risks is estimated to be as much as $3 trillion to the global economy, according to McKinsey’s calculations in the report Risk and Responsibility in
Who’s Looking at You? consumer-generated data, Big Data, & health
Opportunities abound for sharing data “for good” – to turbocharge clinical trials, inform medical research, anticipate and better manage epidemics, and focus on individual health goals benchmarking oneself vs. peers. At the same time, third party data brokers and marketing interests with which consumers have no direct connection of knowledge are scraping together bits of personal information from internet clouds, social networks, and retail data from which profits are made. And that value does not accrue to the very individuals whose data are being sold. Here’s Looking At You: How Personal Health Information Gets Tracked And Used, published by California HealthCare
Big Data Come to Health Care…With Big Challenges – Health Affairs July 2014
“For Big Data, Big Questions Remain,” an article by Dawn Falk in the July 2014 issue of Health Affairs, captures the theme of the entire journal this month. That’s because, for every opportunity described in each expert’s view, there are also obstacles, challenges, and wild cards that impede the universal scaling of Big Data in the current U.S. healthcare and policy landscape. What is Big Data, anyway? It’s a moving target, Falk says: computing power is getting increasingly powerful (a la Moore’s Law), simpler and cheaper. At the same time, the amount of information applicable to health and health care
How smart do you want your home to be?
Smarter homes can conserve energy, do dirty jobs, and remind you to take your medicine. In doing all these things, smart homes can also collect data about what you do inside every single room of that home. The fast convergence of Wi-Fi and sensors are laying the foundation for the Internet of Things, where objects embedded with sensors do things they’re specially designed to do, and collect information while doing them. This begs the questions: what do you want to know about yourself and your family? How much do you want to know? And, with whom do you want to
People want mobile health by phone, and FICO knows it
Most people (54%) want their mobile phones to enable health care interactions, according to Mobile Thought Leadership, a paper from FICO that summarizes data from a survey conducted with health citizens around the world. FICO conducted research among 2,239 adult smartphone users in the UK, Australia, Brazil, China, France, Germany, India, Italy, Japan, Korea, Mexico, Russia, Turkey and the United States. The data discussed here in Health Populi refer to a subset covering just U.S. consumers. Among the one-half of consumers interested in doing more health care interactions via mobile in the future, the most popular options are: receiving reminders of appointments,
Practice Fusion joins the open health data community with Insight
Open data is a growing trend in health care. Analyzing data sets across lots and lots of people can help researchers identify medical cures, anticipate epidemics, and solve knotty problems where social and behavioral issues complicate clinical questions and solutions. Joining the open health data community is the health IT company Practice Fusion, which is sharing with the public aggregated data on some 81 million patients collected through over 100,000 active users every month recording patient data in the company’s cloud-based electronic health records system. Insight, the searchable database, is freely available to people, researchers, policymakers, and anyone who wants to look at top line
Privatizing health privacy in the US?
8 in 10 people in the U.S. believe that total privacy in the digital world is history, based on a survey from Accenture conducted online in March and April 2014 and published in the succinctly-titled report, Eighty Percent of Consumers Believe Total Data Privacy No Longer Exists. 84% of U.S. consumers say they’re aware what tracking personal behavior can enable – receiving customized offers and content that match one’s interests. At the same time, 63% of people in the U.S. also say they have a concern over tracking behavior. Only 14% of people in the U.S. believe there are adequate safeguards
Health care at an inflection point: digital trends via Mary Meeker
When Mary Meeker talks, the digerati listen. Meeker is the digital industry analyst who’s a partner at KPCB, a venture capital company, in Silicon Valley. Each year she publishes a report on the state of the digital marketplace. Her 2014 paper, Internet Trends 2014 – Code Conference (dated May 28 2014) is online, and as usual, it’s full of data points on both digital technology segments along with some vertical industry findings – in education, financial services, and health, among other segments. I’ve combed through the 164 pages of the PDF to trend-weave the health implications. When it comes to health, the
The Season of Healthcare Transparency – Consumer Payments and Tools, Part 4
“The surge in HDHP enrollment is causing patients to become consumers of healthcare,” begins a report documenting the rise of patients making more payments to health providers. Patients’ payments to providers have increased 72% since 2011. And, 78% of providers mail paper statements to patients to collect what they’re owed. “HDHPs” are high-deductible health plans, the growing thing in health insurance for consumers now faced with paying for health care first out-of-pocket before their health plan coverage kicks in. And those health consumers’ expectations for convenience in payment methods is causing dissatisfaction, negatively affecting these individuals and their health providers’
The Season of Healthcare Transparency – Will Your Health Plan Be Your Transparency Partner? – Part 3
Three U.S. health plans cover about 100 million people. Today, those three market-dominant health plans — Aetna, Humana and UnitedHealthcare — announced that they will post health care prices on a website in early 2015. Could this be the tipping point for health care transparency so long overdue? These 3 plans are ranked #1, #4 and #5 in terms of market shares in U.S. health insurance. Together, they will share price data with the Health Care Cost Institute (HCCI), a not-for-profit organization dedicated to research on U.S. health spending. An important part of the backstory is that the HCCI was
In a world of digital health data, more sick people trade off privacy risks
People managing chronic diseases are more likely to have accessed information in their electronic medical records — and are also less likely to worry about the privacy risks of their personal electronic health information compared with people who are healthy. Over 2,000 people, both those who say they’re healthy and those with chronic conditions, were surveyed by Accenture in February-March 2014, and their responses are summarized in the report, Consumers with Chronic Conditions Believe the Ability to Access Electronic Medical Records Outweighs Concern of Privacy Invasion. Slight more consumers are concerned about privacy risks related to online banking, online shopping,
The retailization of digital health: Consumer Electronics Association mainstreams health
The Consumer Electronics Association (CEA) has formed a new Health and Fitness Technology Division, signalling the growing-up and mainstreaming of digital health in everyday life. The CEA represents companies that design, manufacture and market goods for people who pay for stuff that plugs into electric sockets and operate on batteries — like TVs, phones, music playing and listening, kitchen appliances, electronic games, and quite prominent at the 2014 Consumer Electronics Show, e-cigarettes (rebranding “safe smoking” as “vaping” technology). In its press release announcing this news, CEA President and CEO Gary Shapiro says, “Technology innovations now offer unprecedented opportunities for consumers to
Consumers and health data sharing: managing risk via anonymity
9 in 10 U.S. adults would be willing to share their personal health information to help researchers better understand a disease or improve care and treatment options — with varying desires to control the anonymity of their data, according to the fourth Makovsky Health/Kelton Survey published April 24, 2014. This study gauged peoples’ perspectives on personal data privacy based on 1,001 responses from Americans ages 18 and older and was fielded in March 2014. The chart shows four variations on the theme of consumers’ interest in sharing their personal health data with researchers, finding that: – 40% of people
The new health economy, starring the consumer
“In the New Health Economy, ‘patients’ will be ‘consumers’ first, with both the freedom and responsibility that come with making more decisions and spending their own money.” This vision of the near-future is brought to you by the New Health Economy, a report from PwC’s Health Research Institute (HRI). The chart attests the fact that U.S. “consumers” are already spending nearly $3 trillion (with a capital “T”) on products and services that bolster personal health. This spending includes $94 billion on nutrition, $62 billion on weight loss, $59 billion on sporting goods and apparel, $45 billion on (so-called) organic and
Your health score: on beyond FICO
Over one dozen scores assessing our personal health are being mashed up, many using our digital data exhaust left on conversations scraped from Facebook and Twitter, via our digital tracking devices from Fitbit and Jawbone, retail shopping receipts, geo-location data created by our mobile phones, and publicly available data bases, along with any number of bits and pieces about ‘us’ we (passively) generate going about our days. Welcome to The Scoring of America: How Secret Consumer Scores Threaten Your Privacy and Your Future. Pam Dixon and Robert Gellman wrote this well-documented report, published April 2, 2014 by The World Privacy Forum.
Health consumers building up the U.S. economy
U.S. consumer spending on health care is boosting the nation’s economy, based on some new data points. First, health care spending grew at an annual rate of 5.6% at the end of 2013, USA Today reported. This was the fastest-growth seen in ten years, reversing the fall of health spending experienced in the wake of America’s Great Recession of 2008. Furthermore the Centers for Medicare and Medicaid Services (CMS) anticipates health spending to grow by 6.1% in 2014 with the influx of newly-insured health plan members. Healthcare was responsible for one-fourth of America’s GDP growth rate of 2.6%, which is
Doctors and mHealth apps: chaos, evidence, creation
Over one year ago, an eClinicalWorks survey found that 9 in 10 physicians would be interested in prescribing a mobile health app to a patient. That’s a big number. That’s “interest,” but that demand hasn’t yet been expressed in the current go-go app-happy environment. An opinion piece in this week’s Online First edition of the Journal of the American Medical Association (JAMA) demonstrates the fork-in-the-road facing clinicians and the disruption/opportunity that is mobile health. In “In Search of a Few Good Apps,” a Boston-based trio of writers (two physicians and one PhD) talk about “the bewildering diversity of apps available
FICO scores for health – chatting with a #BigData pioneer
I had the pleasure of spending quality time brainstorming with Mikki Nasch, co-founder of AchieveMint, yesterday. Mikki worked on the early days of building the FICO score with Fair Isaac, so has been involved in Big Data well before it became the well-#hashtagged buzzword it is today. In our conversation, we talked about the history of FICO and how it took about a decade for consumers to understand it, accept it, and use it as a tool for bettering their credit ratings. When a FICO score was below an acceptable threshold to a lender – say, for a new car
Health care in a multiscreen world
In 2014, we are digital omnivores. Most people “consume” information and entertainment on more than one screen: 7 hours’ worth over a 5-hour period. You read that right: most people who watch TV, use a laptop or PC, smartphone or tablet are multitasking use of these devices in parallel. And above all, people are using smartphones as their primary screen. The AdReaction: Marketing in a multiscreen world report from Millward Brown paints a picture of global consumers who are cobbling together multiscreen experiences. The smartphone has become the “do it all” device if you don’t carry a laptop or tablet around, especially favored
Why a grocery chain supports health data liquidity
The CEO of a family-owned grocery store chain wrote a letter to New York State lawmakers to support $65 million worth of spending on a computer system for health information in the state. That grocer is Danny Wegman, and that project is the Statewide Health Information Network, aka SHIN-NY. In his letter beginning, “Dear New York Legislator,” Wegman identifies several benefits he expects would flow out of the health IT project: 1. Improve health care for all New Yorkers 2. Lower health care costs, through reducing hospital readmission rates and reducing duplicate testing. 3. Lead to health data “liquidity” (my
Pharma warming up to the cloud to drive efficiencies and support analytics
Over the next few years, large global pharma companies will need to wring out an additional $35 billion worth of efficiencies in order to drive profitability. While the industry has most of the patent cliff challenge behind it, companies face price constraints with respect to health reform, static national economies, and access demands. As the pharmaceutical industry enters the value-based health care era, the industry must catch up with other vertical markets in adopting information technology. In particular, pharma has been slower to migrate to the cloud than other businesses, with concerns about security and health care particular needs. Today, the
The digital health bubble – is it about to burst? #SXSW
That’s a useful and timely question, given the news that Castlight Health will launch its IPO with valuations north of $1 billion. Yes, “billions,” and according to a MarketWatch analysis, “it’s a bargain at $1 billion.” So then – do we anticipate a bubble? asked Marc Monseau of the Mint Collective, the convener of our panel who brought together Robert Stern, a successful health-tech entrepreneur whose latest venture, @PointofCare, focuses on patient engagement; Marco Smit of Next Innovation Health Partners (parting from the Health 2.0 Conference family where he led Health 2.0 Advisors for several years); and me. Some key
Health data data everywhere – let’s human-scale it / Report from #SXSW #SXSH
Health data is everywhere, but not much useful to drink. Is #bigdata in health care at the top of the Hype Cycle? And how do we humanize it, make it relevant and useful for our everyday life? In other words, can this data help us hack our lives and health for the better? That question has been on my mind for the past couple of years since the convergence of big data and data analytics and health has emerged. Yesterday at the 2014 South-by-Southwest happening, I attended a panel discussion called Hacking Your Life For Better Health (#hacklife on Twitter).
Digital health is hot at South-by-Southwest #SXSH
Today kicked off the 2014 South-by-Southwest Festival (#SXSW) in Austin, TX, running until March 16 and featuring dozens of sessions, concerts, video, and fireside chats in music, film and interactive segments. I’ll be involved in an interactive session on Tuesday called “The Digital Health Bubble – Is It About to Burst?” This panel includes Marc Monseau (@MDMonseau) who is a pioneer in health and social media (building J&J’s early leadership in social health online); Marco Smit (@MrHealth20) who leads Health 2.0 Advisors and is a veteran strategist in several health/tech companies; and, Robert Stern, Founder/CEO of @PointofCare, a health IT platform that
HIMSS14 Monday Morning Quarterback – The Key Takeaways
Returning to terra firma following last week’s convening of the 2014 annual HIMSS conference…taking some time off for family, a funeral, the Oscars, and dealing with yet another snowstorm…I now take a fresh look back at #HIMSS14 at key messages. In random order, the syntheses are: Healthcare in America has entered an era of doing more, with less...and health information technology is a strategic investment for doing so. The operational beacon going forward is moving toward The Triple Aim: building population health, enhancing the patient’s experience, and lowering costs per patient. The CEO of Aetna, Mark Bertolini, spoke of the
Watson goes wellness
IBM’s data analytics engine Watson, having cut its teeth on complex health care conditions like cancer, is now entering an even more challenging space: wellness. Why is wellness more challenging? Because understanding a person’s wellness goes beyond mining data from health care claims silos in hospitals, pharmacies, and physicians’ electronic health records. Wellness happens where we live, work, play and pray. Wellness is nurtured through choices made every day at home, in the workplace, and at moments-of-truth in the grocery store and restaurant where slick marketing messages planted in our subconscious compete with our more rational minds that tell us to
I was invited to be a Judge for the upcoming CES 2025 Innovation Awards in the category of digital health and connected fitness. So grateful to be part of this annual effort to identify the best in consumer-facing health solutions for self-care, condition management, and family well-being. Thank you, CTA!
Thank you Team Roche for inviting me to brainstorm patients as health citizens, consumers, payers, and voters in the Healthcare Transformers series.
For the past 15 years, the annual CES conference in Las Vegas has been my go-to meeting for updating my research and network in digital health and consumer-facing electronics that people find meaningful for their well-being, families, and home lives. I'll be back in Vegas in January for a full week of Media Days, one-on-one meetings, and speaking about my perspectives on health consumers.