A blog covering the health/care ecosystem and people.

“Voter registration in hospitals is the new frontier in health care.” That’s the headline in a WBUR story last week detailing the efforts of health care professionals in “amplifying” their patients’ voices inside and outside of the hospital walls by advocating for their health citizenship — through voter registration and public health policy advocacy.                  I’m a long-time evangelist for health citizenship and the role that a person’s engagement in the civic commons plays in one’s own health, the health of their communities and of the nation as a whole. I’m not alone

Most Americans follow some kind of eating regime, seeking energy, more protein, and healthy aging, according to the annual 2024 Food & Health Survey published this week by the International Food Information Council (IFIC). But a person’s household finances play a direct role in their ability to balance healthful food purchases and healthy eating, IFIC learned.              In this 19th annual fielding of this research, IFIC explored 3,000 U.S. consumers’ perspectives on diet and nutrition, trusted sources for food information, and new insights into peoples’ views on the GLP-1 weight-loss drugs and the growing sense

Less than 50% of people living in 16 countries do not trust government, media, or NGOs to do what is right to address their health needs and concerns, based on the responses from over 15,000 people living in 16 countries whose opinions are captured in the 2024 Edelman Trust Barometer’s Special Report on Trust and Health.           Edelman launched the 2024 Trust Barometer earlier this year during the Davos World Economic Forum, and today released this round of research focused on health. Globally (among health citizens in the 16 countries polled in the study), trust for

A “rebel” is both a noun and a verb. As a noun, Merriam-Webster tells us that a rebel is a person who opposes or takes up arms against a government or a ruler. As a verb, “to rebel” is to oppose or disobey one in authority or control, or otherwise renounce and resist by force the authority of one’s government.” An additional definition of the verb is, “to feel or exhibit anger or revulsion.” If you’ve been a patient facing a diagnosis of an illness, whether rare or common, you may well have felt these various feelings stirring inside your self.

If it’s January, it’s Davos-time — that is the annual meeting of the World Economic Forum convening global experts and passionistas focused on big ideas and challenges facing us mere humans living on Planet Earth. Parallel with the WEF is the annual publication of the 2024 Edelman Trust Barometer, now in its 24th year, focusing on global citizens’ concerns that unite people around the world. For the 2024 study, Edelman’s team fielded the survey in November 2023, collecting input from over 32,000 people living in 28 countries. About 1,150 interviews (plus or minus) were done in each nation which included

It is about time that a healthcare journal features examples of patient-leaders who have pioneered activism, innovation, and The first exemplar in this vein is Casey Quinlan, whom we lost all-too-soon earlier this year on 24th August. A team of her appreciative colleagues and friends wrote up the first in a new series called “Extraordinary Lives” published in the Journal of Participatory Medicine (JPM) titled “An Extraordinary Voice Expressed Through Humor: A Tribute to Casey Quinlan.” I played a minor role in getting this essay to the finish line, and am grateful to have had the opportunity to do so

Patients’ comfort in artificial intelligence is linked to familiarity with the technology, a consumer survey from GlobalData learned. Among patients unfamiliar with AI, 42% are uncomfortable, and another 50% feel neither comfortable nor uncomfortable with the technology. However, among patients familiar with AI, 60% feel comfortable with visiting a medical practice that uses AI. Welcome to the new health literacy challenge the health care sector will have to deal with, and soon: lack of patients’ awareness of AI, its promises and pitfalls.             “It is imperative to prioritize patient education regarding this technology,” Urte Jakimaviciute

Three in four U.S. health citizens say the spread of false information about health issues is a major problem, found in Kaiser Family Foundation’s Health Misinformation Tracking Poll Pilot published earlier this month.           KFF’s press release on the study summarized the top-line with, “Most Americans Encounter Health Misinformation, and Most Aren’t Sure Whether It’s True or False.” Explaining the implications of the broad reach of health misinformation in the U.S., Dr. Geeta Nayyar has written the book Dead Wrong: Diagnosing and Treating Healthcare’s Misinformation Illness, due out on October 17th and available now for pre-purchase

Despite some improvement in the representation of women by cinema, TV shows, and brands, distortions in media remain that are risks to women receiving appropriate health care. Breaking through taboos of weight, reproductive services, and mental health are the top 3 factors preventing women from getting proper care, according to Health On Her Terms, a research study from WPP and Ogilvy partnering with SeeHer, an organization of collaborations from media, technology, business, education, and other sectors (including over 7,000 brands) focused on the accurate portrayal of women and girls in society. Taglined as “The Marketer’s Hippocratic Oath to Women, the

Doctors in the U.S. believe that the medical mis-information problem is worsening, learned in survey research from Merck Manuals. Doctors and patients, both, have roles to play in addressing medical misinformation online.                   Less than half of consumers, 44%, said that that there is more medical mis-information online than previously. That’s less than half of the percentage of doctors saying so — 98%, virtually all U.S. physicians, citing the problem. There were several disconnects noted in the Merck Manuals study showing starkly different perceptions of health information online between doctors and patients:

The goal of self-care for health-making is to improve lives by scaling health-and-wellness accessible to all, Bayer believes, giving people more control over their personal health. Self-care work-flows must be based in science to ensure products and services are trusted and deliver on their clinical promise, Bayer explains in Science-Led Self-Care: Principles for Best Practice, a paper published this week which the company intends to be a blueprint for the industry.                 Bayer recognizes that self-care is growing among health consumers around the world — albeit underpinned by peoples’ cultures, demographics, and “readiness”

“I am a health care executive who happens to be a patient, caregiver, and advocate,” Stacy Hurt explained to me in a Zoom chat we shared on 31 May. I asked her to meet with me to discuss her professional news update: being appointed Parexel’s first Patient Ambassador.                       My Zoom invitation to Stacy was a very convenient excuse for me to catch up with a friend in the field: we have known each other since Stacy started to grow her health-social media presence on Twitter. And that involvement in

This week, public health truths have collided with social media, the infodemic, and health citizenship. First, I read in Becker’s Health IT on February 16 that the peer-reviewed policy journal Health Affairs was prevented by a social media outlet from promoting its February 2022 issue themed “Racism and Health.” The company said the topic was too controversial to feature in this moment. “Google and Twitter are blocking its paid media ads to promote the content, flagging racism as ‘sensitive content,'” Molly Gamble explained in Becker’s. I myself used the blogging platform you’re on now to promote the February ’22 issue of

As we enter COVID-19’s “junior year,” one unifying experience shared by most humans are feelings of pandemic fatigue: anxiety, grief, burnout, which together diminish our mental health. There are many signposts pointing to the various flavors of mental and behavioral health challenges, from younger peoples’ greater risk of depression and suicide ideation to increased deaths of despair due to overdose among middle-aged people. And about one-in-three Americans has made a 2022 New Year’s resolution involving some aspect of mental health, the American Psychiatric Association noted approaching the 2021 winter holiday season. Underneath this overall statistic are important differences across various

A new look into Americans’ views on health privacy from Morning Consult provides a current snapshot on citizens’ concerned embrace of technology — worried pragmatism, let’s call it. This ambivalence will flavor how health citizens will adopt and adapt to the growing digitization of health care, and challenge the healthcare ecosystem’s assumption that patients and caregivers will universally, uniformly engage with medical tools and apps and technologies. More Boomers are concerned with health data app privacy than Gen Z consumers, as the chart illustrates. 46% of U.S. adults said that health monitoring apps were not an invasion of privacy; 32%

Post-pandemic, the consumer’s priority purchases are grocery, nesting, and health, according to David Shah, a leading thinker about social and design trends. David presented the latest Pantone forecast on color and society in NewTopia – A Balance of Color Opposites – Color for a Post-COVID World this week. I had the opportunity to attend the session, and want to share the health and wellness-related insights David shared in his fast-paced view on the role of color in bolstering wellbeing and community looking out to 2022/23. For context, Pantone plays a role in your life you might not realize. In health

You’re stressed, I’m stressed; most of us have felt stress in the COVID-19 era which began in the U.S. in the first quarter of 2020. Nearly eighteen months later, a 2021 Edelman Trust Barometer update finds that consumers’ trust in the health care industry is under stress, too — in the U.S. and around the world. The first chart from the Edelman health care update demonstrates that in most countries polled, health citizens’ trust in health care was buoyed in the first five months of 2020 (January through May): up 18 points in the U.S., 14 points in Canada and

A year into the COVID-19 pandemic, most Americans are still in “survival mode,” according to an update of the 2021 Edelman Trust Barometer, Trust and the Coronavirus in the U.S. Updating the company’s annual Trust Barometer, Edelman conducted a new round of interviews in the U.S. among 2,500 people in early March. [For context, you can read my take on the 2021 Edelman Trust Barometer published during the World Economic Forum in January 2021 here in Health Populi].  The first chart shows that two in three people in the U.S. are still in a pandemic mindset, worried about safety and

Citizens around the world unite around the concept that Trust is Dead. This is no truer than in the U.S., where trust in every type of organization and expert has plummeted in the wake of the COVID-19 pandemic, political and social strife, and an economic downturn. Welcome to the sobering 2021 Edelman Trust Barometer, released this week as the world’s technology innovators and analysts are convening at CES 2021, and the annual JP Morgan Healthcare meetup virtually convened. As the World Economic Forum succinctly put the situation, “2020 was the year of two equally destructive viruses: the pandemic and the

When it comes to patients, health care providers have been hit hard in two ways in the wake of the COVID-19 pandemic. Hit #1 has been the direct negative impact of the coronavirus on health care volumes and patients not utilizing hospitals and doctors’ services, avoiding physical encounters in health care sites Hit #2 has been the negative impact of patient experience for those health consumers who sought health care services during the pandemic — and had a negative response to the encounter. Accenture explored this phenomenon in their latest report, Elevating the Patient Experience to Fuel Growth. In the

The coronavirus pandemic has revealed the importance of connectivity, WiFi, broadband, as a social determinant of health and living. Connecting from our homes — now our health hubs, workplaces, schools, entertainment centers, and gyms — is necessary like air and water for survival across daily life flows. Digital connectivity can ameliorate social isolation and anxiety, bolster mental health, and access needed medical care via telehealth channels. As a result of the pandemic, staying connected is more important than ever for older people, Best Buy Health learned in a survey of U.S. adults. Insights from this study have informed the launch

One in two Americans trust the Centers for Disease Control for the facts on the coronavirus pandemic, and 43% trust the World Health Organization. But there’s a huge trust deficit when it comes to trusting President Donald Trump on the facts about COVID-19, a poll from Morning Consult and The Hollywood Reporter found. 2,200 U.S. adults were surveyed between 12 and 15 March 2020 on the coronavirus pandemic and their perspectives on the media and political leaders’ information credibility. For news on the pandemic, only one in five Americans believed the President and 18%, the Vice President, Mike Pence, followed

One in two people over 50 bought a piece of digital technology in the past year. Three in four people over fifty in America now have a smartphone. One-half of 50+ Americans use a tablet, and 17% own wearable tech. The same percentage of people over 50 own a voice assistant, a market penetration rate which more than doubled between 2017 and 2019, AARP noted in the 2020 Tech and the 50+ Survey published in December 2019. For this research, AARP worked with Ipsos to survey (online) 2,607 people ages 50 and over in June and July 2019. Across all

By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust           A Matter of Trust, by Billy Joel If you’re in health care and don’t live under a rock, you have probably heard that United Health Group (UHG) has acquired PatientsLikeMe (PLM).  After the announcement, there was a lot of sound and fury, some of which signified nothing, as the saying goes, and some which signified a lot.

Food insecurity ranks high on Americans’ greatest social health risks. In local communities, grocery stores are playing key roles in bolstering neighborhood wellness. Publix and other food chains, collaborating with the Produce for Kids program, are walking the talk on nutrition for local health citizens. Produce for Kids is associated with Feeding America, which works with local food banks and non-profits to help channel healthy food to children and families. Feeding America is a national network of over 200 food banks fighting hunger in America, serving over 46 million people and 60,000 food pantries, and advocating for legislation that addresses

Over the ten years between 2007 and 2017, U.S. consumer spending for education, food and health care substantially grew, crowding out spending for other categories like transportation and housing. Furthermore, income disparity between wealthy Americans and people earning lower-incomes dramatically widened: between 2007-2017, income for high-income earners grew 1,305 percent more than lower-incomes. These two statistics set the kitchen table for spending in and beyond 2019, particularly for younger people living in America, considered in  Deloitte’s report, The consumer is changing, but perhaps not how you think. The authors are part of Deloitte Consulting’s Retail team. The retail spending data

Seeking health information online along with researching other patients’ perspectives on doctors are now as common as booking dinner reservations and reading restaurant reviews, based on Rock Health’s latest health consumer survey, Beyond Wellness for the Healthy: Digital Health Consumer Adoption 2018. Rock Health has gauged consumes’ digital health adoption fo a few years, showing year-on-year growth for “Googling” health information, seeking peer patients’ physician and hospital reviews, tracking activity, donning wearable tech, and engaging in live telehealth consultations with providers, as the first chart shows. The growth of tracking and wearable tech is moving toward more medical applications beyond fitness

“Seeing is not believing” when it comes to people seeing health information on social networks. Four in five people seeking healthcare information online in social media are concerned about the accuracy of that information served up. Therefore, most consumers a very satisfied with the healthcare information they receive from nurses, eye doctors, pharmacists, dentists, nurse practitioners, doctors, and dietitians. But social media influencers. patient organizations, online patient forums, and pharmaceutical companies? Not so much. Only one-half of U.S. consumers believe that health-related information on the internet is as reliable as information from medical professionals. Welcome to The Great American Search for

There are health facts that are based on rigorous scientific evidence. And, there are people who, for a variety of reasons, make irrational healthcare decisions without regard to those health facts. An important new report discusses the all-too-human aspects of people-as-patients, who often make health decisions based more on emotions than on the cold, hard truths that could save their lives and protect the well-being of loved ones. Preventative care and behavioural science: The emotional drivers of healthcare decisions is that report, sponsored by Pfizer Vaccines and written by the Economist Intelligence Unit (EIU). The report analyzes the psychological factors that shape consumers’ health

If you live in one of nine U.S. states, your chances of having heart disease are greater than living in the 41 others. This geography-as-destiny for heart conditions is examined in The Burden of Cardiovascular Diseases Among US States, 1990-2016 published in JAMA Cardiology. Researchers analyzed data on cardiovascular disease mortality, nonfatal health outcomes, and risk factors by age, sex, and year from 1990 to 2016 for the U.S. population. The outcome used to measure health by state was cardiovascular disease disability-adjusted life-years, or DALYs (FYI, “DALYs” are a commonly used metric in health economics research).   Pennsylvania While overall cardiovascular

Most Americans say that pharmaceutical manufacturers, banks, advertisers, energy firms, and tech companies have too much power and influence in today’s American economy, according to Public Attitudes Toward Technology Companies, a research report from the Pew Research Center. A plurality of Americans says labor unions and farming and agriculture have too little power, along with a majority of people who believe that small business lacks sufficient power in the current U.S. economy. This data point is part of a larger consumer survey on Americans’ attitudes about the growing role of technology in society, particularly with respect to political and social impacts.

The communications team at Sanofi, the France-based global pharmaceutical company, quickly responded to a tweet by Roseanne Barr issued this morning about how her use of Ambien was related to her offensive tweet lobbed yesterday on Twitter about Valerie Jarrett, President Obama’s senior advisor. Barr’s comment on Twitter late last night was that, “I was ambien tweeting.” Ambien is Sanofi’s prescription drug used by patients to deal with insomnia and sleeplessness. Data provided to the FDA from patients who have used the product demonstrate a variety of side effects including but not limited to nausea, headache, slowed breathing, and amnesia

What a difference a couple of weeks make…. On 1st March 2018, two over-arching issues remained with me leaving Las Vegas and #HIMSS18: the central, recognized role of cybersecurity threats in healthcare, and the growing use of consumer-facing technologies for self- and virtual care. Eighteen days later, we all learned about Cambridge Analytica’s misuse of 50 million Americans’ social network data posted on Facebook. We who work in healthcare must pose the questions: going forward, how trusting will patients, consumers and caregivers be sharing their personal health information (PHI)? Will people connect dots between their Facebook lives – and their

We are only just past the dawn of the second machine age, where digitization is enabling artificial intelligence. “Our new tools are destroying both trust and truth, creating a hunger for community and authenticity. We crave actual physical connection to neighbours, colleagues, and fellow townspeople, even if digitally facilitated.”  Anne-Marie Slaughter wrote this in a column I read this morning in the Financial Times titled, “Our struggle with technology to protect trust and truth.” Trust and truth underpin health engagement, we learned in the first Edelman Health Engagement Barometer launched ten years ago. Those were the early days of the formation

Let’s change the conversation and put healthcare over  politics.  Sounds just right, doesn’t it? If you’re reading Health Populi, then you’re keen on health policy, health economics, most of all, patients: now playing starring roles as consumers, caregivers, and payors in their own care. Andy Slavitt, former Acting Administrator of the Centers for Medicare and Medicaid Services (CMS), has assembled a diverse group of health care leaders who care about those patients/people, too, appropriately named the United States of Care. Founders include Dr. Bill Frist, former Republican U.S. Senator from Tennessee, Dave Durenberger, former Republican U.S. Senator from Minnesota, and

Picture this scenario: you, the consumer, take a dollar and spend it, and you get 90 cents back. In what industry is that happening? Here’s the financial state of healthcare in America, explained in the 2016 Health Care Cost and Utilization Report from the Health Care Cost Institute (HCCI). We live in an era of Amazon-Primed consumers, digital couponing, and expectations of free news in front of paywalls. We are all in search of value, even as the U.S. economy continues to recover on a macroeconomic basis. But that hasn’t yet translated to many peoples’ home economics. In this personal

On this day appreciating the legacy of Martin Luther King, Jr., I post a photo of him in my hometown of Detroit in 1963, giving a preliminary version of the “I Have a Dream” speech he would deliver two months later in Washington, DC. Wisdom from the speech: “But now more than ever before, America is forced to grapple with this problem, for the shape of the world today does not afford us the luxury of an anemic democracy. The price that this nation must pay for the continued oppression and exploitation of the Negro or any other minority group

Nurses working in the U.S. are number one when it comes to ethics and honesty, the Gallup Poll found for the sixteenth year in a row. After nurses, military officers, grade school teachers, medical doctors and pharmacists rank second through fifth in ethical-line behind top-rated nursing. It’s important to note that consumers have ranked pharmacists and doctors in second and third place in this annual survey for many years. This year, both professions fall below the military and teachers. Nurses have been #1 in this study every year since Gallup launched the survey in 1999, except for 2001 when firefighters topped

Health permeates a plethora of TIME magazine’s 25 Best Inventions of 2017. From head to foot, health is the mother of invention, based on TIME’s curation of “the best” things launched to market in the past year. Starting with “the head,” the Oculus Go virtual reality (VR) headset from Facebook. While the first function with which VR is associated is fun and games, Dr. Brennan Spiegel at UCLA Geffen School of Medicine has been proving out VR‘s value in helping patients deal with pain and medical management. Keep your eye on his and others’ research into VR’s use in healthcare. The

Above the economy, trust in government, crime, war, terrorism, and taxes, health care is the top cause of stress in America. For ten years, the American Psychological Association has gauged Americans’ collective mood in their ongoing study, Stress in America. The latest report is The State of Our Nation, published this month, finding that we’re at the “lowest point in our nation’s history” according to 59% of Americans. The 2016 national election in the U.S. raised the stress-stakes, when APA released a stress study we discussed here in Health Populi. The election season was a source of stress for 52%

2 in 3 Americans get news via social media, according to News Use Across Social Media Platforms 2017 from the Pew Research Center. One in 5 people get news “often” from social media, shown in the first chart. The growth of people accessing news via social media, overall, hasn’t dramatically grown in the year since 2016. But underneath that fairly flat trend is some important movement to note by demographic cohort, which has implications for health/healthcare marketing: 55% of people 50 and over are social media news consumers (8 in 10 people under 50 are) Nonwhites are more likely than whites

Patient satisfaction should be baked into healthcare provider service goals, according to Prioritizing the Patient Experience from West Corporation, the communications company. West is in the business of improving communications systems, and has a vested interest in expanding comms in health. This research polled patients and providers to assess how each healthcare stakeholder perceives various patient satisfaction issues, which when done well are grounded in sound communications strategy and technologies. Patient satisfaction is directly linked to the bottom lines of healthcare organizations, West contends, due to two key drivers: Evolving payment models are increasingly tying patient satisfaction to reimbursements; and,

U.S. consumers consider Consumer Electronics to be the most innovative industry they know. But people believe that Health & Wellness should be the most innovative sector in the economy. Welcome to the 2017 Klick Health Consumer Survey, which focuses on health innovation in the context of peoples’ hopes for technology to improve health and healthcare. 1 in 2 people say that technology has had a positive impact on their health and wellness, skewing slightly more toward younger people (although 45% of people 55 years of age and older agree that tech positively contributes to health. 41% of consumers say they’ve

As addictions go, social media can be more addictive than cigarettes or alcohol, according to a report from the Royal Society for Public Health (RSPH), #StatusOfMind, on social media and young people’s mental health and wellbeing. With 91% of people age 16-24 using the internet for social networking, that addiction connects to rising levels of anxiety and depression, the Royal Society asserts, recommending some calls to action to address this public health problem head-on. While this report focuses on the population in the United Kingdom (UK), the social media trends are at least as prominent in the US. The calls

For us mere humans, behavior change is hard. Changing health behaviors is really tough. Enter Dr. James Prochaska, who has been at the forefront of researching and understanding human and health behavior for several decades. He’s the father of the Transtheoretical Model of Behavior Change (TTM). I have the honor today to listen live to Dr. Prochaska’s talk at the Health Integrated EMPOWER conference in St. Petersburg, Florida, where I’ll be addressing attendees on the new health consumer tomorrow. “Empower,” indeed. Dr. Prochaska is all about how people have good intentions to make good health decisions, but we all slip and

Just as consumers use TripAdvisor, Zagat, OpenTable, and their Facebook pages to review restaurants, hotels, automobiles, and financial services companies, many patients – now health consumers in earnest – have taken to reviewing healthcare services in social networks. Finding reliable, understandable information about healthcare quality and prices is very challenging for most consumers. Are healthcare reviews on social networks statistically valid? An analysis of consumer ratings for New York State hospitals on Yelp, the social network, were positively correlated to objective scores of hospital quality, according to the research published in Yelp for Health: Using the Wisdom of Crowds to

3 in 4 Americans’ health care costs have risen in the past few years. Two-thirds of Americans want to lower their costs, but don’t know how to do that. A survey from Amino released this week, conducted by Ipsos, has found that one in five people could not afford to pay an unexpected medical bill without taking on debt, and another 18% of Americans could only afford up to $100 if presented with an unexpected medical bill. This medical debt side effect more likely impacts women versus men, the less affluent, the unmarried, and those with no college degree. While

The truest form of health reform and consumer-directed health care isn’t in a high-deductible health plan or a health savings account, and it doesn’t come out of Washington DC or your employer’s health benefits office. It comes from you in the form of self-care and DIY healthcare. In this case, think “inspired by sport, powered by you.” I’ll be participating on a panel at this weekend’s South-by-Southwest Festival in Austin, Texas, along with three wellness innovators: Nick Buettner of the Blue Zones project, Mary Liz McCurdy of Google, and John Wilbanks from Sage Bionetworks. Together, our quartet will brainstorm the

Availability of quality healthcare, followed by affordable care, are the top two issues concerning U.S. consumers surveyed just prior to Donald Trump’s inauguration as the 45th U.S. President. Welcome to Consumer Reports profile of Consumer Voices, As Trump Takes Office, What’s Top of Consumers’ Minds? “Healthcare for All, Only Better,” Consumer Reports summarizes as the top-line finding of the research. 64% of people are confident of having access to good healthcare, but 55% aren’t sure they can afford healthcare insurance to be able to access those services. Costs are too high, and choices in local markets can be spotty or non-existent.